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Post by heeb on Jan 29, 2007 16:37:43 GMT -5
Is it true that VNS cures epilepsy? My doctor is telling me it's the newest cure and wants me to get one.
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Post by positiveperson on Jan 29, 2007 17:13:22 GMT -5
No it isn't a cure, sometimes it will help control the szs .
The stats are 1/3 have total control, 1/3 have some control with a magnet , 1/3 have no control with the vns .
There is no cure for epilepsy, its a gamble wether it will work for you or not. Why your Dr is exaggerating how well it was works is beyond me?
Wishing you the best of luck what chocie you make
RIVA
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Post by Jennifer on Jan 29, 2007 17:16:05 GMT -5
Hi Welcome to our forum. We do have a forum inside on VNS that you are more than welcome to come and post. I also suggest you pop over to www.vnsmessageboard.org and read and ask many questions. |
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Post by JanaTAS on Jan 30, 2007 23:48:06 GMT -5
The VNS hasn't cured me 100% since the sx. in 1999 but I have improved. I still take 3 meds. and I have also improved since the doctor doubled my Zonegran/ Zonesmaide. I take 200 & 300 of that, Keppra 1500 & 1500 and Phenobarb just at night 2-64.8's. I hope the VNS works out well for you.
Jana
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Post by guest101 on Jan 31, 2007 13:17:50 GMT -5
birdbomb,
i just wanted to let you know that i ran upon your site and it is a great message board!! i applaud you for all of your efforts on the vns message board and thank you for putting that board together to help people.
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Post by guest101 on Jan 31, 2007 13:56:24 GMT -5
it is much appreciated. i have tried several vns sites and i was not pleased with any of the information that was presented. i really need a site that i can depend on and after seeing yours i think i found that site!
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Post by dinger57 on Jan 31, 2007 21:18:58 GMT -5
It doesn't cure it, but it might help you have less seizures. Or control them so they are not as bad.
A Friend With Epilepsy
Ken
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